9 more days..

Only 9 more days until we have to hand our sweet girl over to a surgeon. I have gotten by these last few weeks being distracted by sickness and doing my best to not think about the surgery at all. I'm finally feeling better.. thanks to a 10 day round of antibiotics for a nasty sinus infection. A and B2 still have a slight runny nose but I'm more convinced it is allergies at this point.

We got our tax return and have spent the last week catching up on bills and repaying a few loans from this past year when times weren't exactly great. Thank God that that my Hubby finally got a promotion to a new job that he LOVES and that pays well. The downside is that he has to be out of town 1 or 2 days a week, which is an adjustment for us, but it is well worth it.

The kids and I are starting to get a bit of cabin fever.. we have quarantined ourselves to avoid another episode like 2 weeks ago. I don't think I could emotionally handle having to put surgery off again... so we are doing what we have to do to stay healthy! The kids have been coloring and playing playdoh while I clean and organize our house to prepare for company in the next few weeks... and shop online a little.. lol :)

Our pre op appointment is coming up 1 week from now. I'll update again after that appointment.

Postponed..

Well the last few days have been a whirlwind. We have been busy preparing for B1's upcoming heart surgery and suddenly last night we all came down with a nasty cold. Being only 8 days out from surgery, our surgical team and pediatrician have decided that we need to postpone surgery until we are all healthy and germ free.

This is both frustrating and relieving for us. Frustrating because we have been mentally and physically preparing ourselves for THIS day. February 10th was THE day. We had started making plans for my husband to be off work, for my mother and friend to be available to help out with the A and B2. Relieving though, because now we have a few more weeks to breathe before this extremely emotionally taxing event occurs.

More time with our baby, more time to make memories. It may seem a bit morbid to think like that, but who knows what will happen? We have to make the most of the time we have, never knowing what tomorrow will bring. We have to cherish every moment.

In other news, we took B1 to the ophthalmologist yesterday hoping to find out why she was having headaches and eye pain, usually at the end of the night. Her cardiologists were convinced it wasn't a blood pressure issues so we were hopeful we would find some answers after having her eyes checked. It turns out that she has astigmatism. Her right eye is worse than the left and apparently her brain isn't using this eye as much as it should be. We are hopeful that with the glasses she will begin to use this eye more. The Dr. requested that she get glasses and wear them at all times while she is awake.

In 8 weeks she will be re evaluated, and if the right eye is still being neglected we will have to start patching her left GOOD eye to force the brain to use the right eye. If we didn't take these preventative measures, she could lose vision permanently in this eye.

I'll have to admit, it was hard to hear that my baby has ANOTHER battle to fight. Something else to deal with. Something else I can't fix. Being helpless as a parent is one of the WORST feelings in the world. It makes you feel sad, angry, depressed and guilty all at the same time. All I can hope is that after all is said and done, my baby girl will be just that much stronger as an adult.